wow.
I sat down to the laptop tonight and just stared at the screen for a bit. It's hard to begin explaining how the past 10 days have been. My thoughts are jumbled and my heart is full (to say the least), but I will do my best.
I would like to start off by saying, "thank you!" From the bottom of my heart, thank you. I cannot adequately express what I have been feeling in the past 10 days, but I know the number one emotion has been that of gratitude. The outpouring of love and prayers offered on our families' behalf has been overwhelming and I appreciate it all so so so much and more than you will ever know.
When I began writing my last post, I had a heavy heart. Life the past 3-5 months had been difficult, as I had explained. Typing those words, saying those words out loud for all the world to read, was one of the hardest things I've ever had to do. But by the end of the post, I felt a release. And I felt relieved. Explaining all the gory details of our lives recently left me feeling better about our situation because I was no longer feeling like I was living a lie. Every time anyone would ask, "how are you doing?", I felt like it was such a loaded question. But I answered with the traditional, "I'm fine," because that is what people want and expect to hear. They don't want to hear the nitty gritty details. So I bottled them and they festered...so to release them in that blog post was liberating and brought peace to my soul. It was therapeutic and wonderful.
The response has been overwhelmingly kind and I thank you all for that. While those words were healing, they were hurtful to express openly. So I thank all our friends, family, loved ones, and readers for the kind words offered afterwards. I hope I can live up to even half of the nice things uttered.
On April 22nd (Earth Day!) we had a family doctor's appointment at urgent care because Tim & Ava have bronchitis and I have sinusitis. Our day was filled - this appointment, the pharmacy, lunch, and random errands. We got home to put the youngest girls down for a nap and then Emerie & I ran off to soccer class. After soccer class we had a doctor's appointment for Emerie. I wanted to have a urinalysis done to rule out diabetes.
You see, Emerie had been acting strangely for a few weeks. She was drinking an abnormal amount - excessively and all.the.time. She was hungry all the time, too. Not for just any food - it was all her favorite, picky-eater foods, but she wanted them all.the.time. And because of these things, she was urinating excessively and all.the.time. One night she woke up crying, and we found that she had wet the bed. This was extremely unusual behavior for Emerie - she hadn't wet the bed in over 2 years! Tim believed it was Emerie acting out because of Ava potty training and getting up to go in the middle of the night. We sat in bed, discussing things, and I had the thought - "she has type 1 diabetes". I realized that I had smelled a sweet breath smell on Emerie before that I had only ever smelled with my sister & she had been looking like she had possibly lost some weight. I told Tim I wanted to have her tested, since my dad and sister both had type 1 diabetes, and I arranged for a doctor's appointment.
We arrived to the doctor's office and I explained what we were being seen for. I can't describe what the next 24 hours were like, because they are all surreal. You see, I knew Emerie had diabetes. I can't explain it, but I knew. So after the urinalysis, when the doctor came in to tell me that her blood sugar was abnormally high, I sat there nodding. The doctor kept looking at me, waiting for a reaction - something other than the calmness I was exhibiting. The truth is, nothing hit me until I got in the car and called Tim. And it was nothing about being scared or sad...I was worried when I left the doctor's office because they hadn't given me her blood sugar level and instead had just told me to go straight to Oakland Children's Hospital with Emerie because they would need to admit her. I was worried because the doctor had acted like Emerie had ketones and was terribly sick. And I felt awful that I hadn't taken her in sooner.
We ran home, grabbed a bag for the hospital, and tried to think about how the next few days would be handled. Then we ran out the door and spent the next 8 hours in ER. And the next 2 days in the hospital after that. I drove back and forth - I had to stay with Maisy in the night. Ava was lovingly taken by friends and neighbors.
Emerie's diagnosis was confirmed - she has type 1 diabetes, which means she will be forever insulin-dependent. There are a lot of myths surrounding diabetes, and while most are based on fact, they are based on type 2 diabetes facts. For those living with type 2 diabetes, it is very possible to change diet and lifestyle and live a completely normal life. With type 1, the child (or person) will forever need insulin to regulate their pancreas and their blood sugars. As a friend lovingly explained to me recently, "it's like herding cats!"
Throughout this experience, all I feel is gratitude. I feel a lot of eyes watching me, waiting for me to snap...worrying about me handling yet another thing on our plate right now, but I can say with a surety that I am calm. It is a lot to take in. It's a lot to handle. It is stressful. But it is manageable. I can do this. I can do hard things. And I'm ok. And I'm also sure a lot of my attitude is dependent on the prayers offered on my behalf and I am so grateful for that.
While in the hospital, a diabetes educator asked about my history with the disease. I told her that I grew up with my dad and older sister being type 1 diabetics and she replied, "Oh that's great. You have been prepared for this your entire life." This sentence has stuck with me for the past week as I have thought about things. A friend of mine chatted about it all with me and it's amazing how the Lord prepares us. I am here today because I was supposed to be. I am here because I needed to catch Emerie's diagnosis before she was really sick. A family in our ward had a son recently diagnosed and they just so happened to attend an outing the night we were in the ER, where a friend was able to tell them about what was happening with Emerie. This ward member brought her son to the hospital the next day to visit Emerie and has been a huge help to me during this experience. Emerie's primary teacher is a nurse. Today she told me that she & her husband had been wondering for months why they were in primary, teaching the sunbeams. They had asked themselves "why?" so often, and when they learned of Emerie's diagnosis, they realized that this was "why" - who better able to tell if Emerie is acting differently and in need of help with her blood sugars than a nurse?! I think of all of these things (and there are more!) and I can't help but feel so blessed by these tender mercies.
There are so many things I could say at this time, but I really can't find the words. So for now I will say this: The Lord prepares us for what we need to do. He places people in our path that are best able to help us. He knows us and He loves us.
With that said, let me share what we've been up to for the past looooong while. Some of this is catch-up, and some is recent! ....
{baby cuddles are just the best...and very rare around our home. miss maisy has just started crawling and also broke her first tooth. my baby is gone and I miss her so much!}
{this is the book I mentioned in my last post - it is incredible and I recommend it to anyone!}
{emerie's first day of soccer class! I am one proud mama!}
{maisy enjoys her time at soccer class - it doesn't last too long so she's pretty content to sit and play with toys and watch}
{ava is always very "helpful"}
{and emerie is quite a little natural with soccer!}
{library days are so fun - the girls love bringing home new books}
{our house is full of pink...all the time! tim is certainly outnumbered}
{grampa and gramma sent some fun little gifts for the girls! they love the random goodies we get!}
{we leave for our next disneyland trip next week and we've been doing this little countdown for awhile - each link has a disney character and saying to go with it}
{we took a trip to Lake Merritt in Oakland and ate at the Merritt Bakery & Cafe - and this place/cake inspired some bay area references in the movie "Up!"}
{ava can put.it.down}
{after the cafe, we visited fairyland where we have a season pass - it was a really fun afternoon and this place is so cute and fun!}
{I'm 27 years old and I still play with stuffed animals! I love playing with the girls. I also do a rockin' mickey mouse voice!}
{maisy got to play with mickey and was absolutely thrilled}
{this is how maisy waits for her food}
{don't these two just kill you with cuteness?! and maisy freely gives kisses to everyone BUT me...boo}
And then we ended up in the ER...and Ava wouldn't leave Emerie's side. We actually stayed until 1 in the morning just to make sure that Emerie was going to her room and was going to be ok.......
And then we were in the hospital for a day or two and Emerie received lots of lovely gifts & visits from her friends, and we took a picture of these sisters being cute..........
And then we got home and reality set in and we realized how totally unprepared the hospital allows you to leave. So real life begins. And along with it comes organizing, reading, researching, and worrying about blood sugars. But my new mantra is "I can do hard things"................
And now we are HERE. And it seems strange & surreal, but also like this is the way it was supposed to be.
Several of you have asked how Emerie is doing...Emerie is a rockstar. Being in the hospital was hard on all of us, but most especially her. She is still having difficulty comprehending why she is sick and that it will never go away. That these shots and these measures we take to make her feel good will never end. But each day she gets better about everything. Today was her first full day without any crying with any of her shots. While we were in the hospital, we started s sticker chart with her. Every shot that she is a brave girl for, she gets a sticker. My children are sticker chart obsessed, so this was a great motivator for her. Tomorrow we are going to the store to pick out her first small prize. We are able to prick her finger to check her blood sugar level without any complaint. She happily picks a finger and holds it out. If she had an easier time pushing the button on her lancet, she would be doing them herself. She loves when we let her do it to us. She has been such a brave little girl and we hope that it can only get easier.
I had my first experience talking to someone who didn't understand what type 1 diabetes meant when we were first home from the hospital - we took Emerie & Ava to the disney store to pick out prizes for their chore charts. The cast member helping us asked about Emerie's special bag that she was carrying - it was her bag with all her diabetic supplies in it. I explained it to him and he looked at me and said, "But she looks so healthy! She's not fat or anything!" I then explained that type 1 diabetes wasn't determined by diet and exercise, but instead that she needed insulin shots to regulate her blood sugars. He then replied, "Well hopefully that doesn't last long and her body will just start regulating itself!" I thanked him and we left. Now, I don't find anything wrong with this experience - I understand it and I understand that he was just being kind, hoping that Emerie didn't have to do shots forever. It makes perfect sense to me. But these comments, along with others I have heard since her diagnosis, have enlightened me to the fact that not many people know much about type 1 diabetes! I realize now that not everyone grew up in a household where it was an everyday thing & just a normal part of life. Most people know about type 2 diabetes and probably know someone that has it. For those of you that don't know much about type 1, I have included a link at the top of the page, near the links for Emerie & Ava's twitter feeds. If you are at all interested in knowing more about type 1 diabetes, I urge you to visit the Mayo Clinic's page for more information.
We love & appreciate you all for your concern and love. Thank you from the bottom of our hearts!
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